Still afraid of als

[Brandon713]

Back here once again. The tip of my pinky is not numb but it doesnt have any feeling in it. The top of my pinky curves inward in the palm of my hand. Both of my the thumbs are tight and weak. It feels like my both thumbs are separating from my hand. My thumb coordination is really off like it’s difficult to do task. I’m in a bad place right now. These symptoms are coming out of know where and that’s why I think I have als. I wish some people could understand how these symptoms feel because they are so real.

 

[Brandon713]

Both of my thumbs seem to stretch further than they were before, harder to grip items. They are getting worse by the day

 

[bigjetplane23]

I think anxiety makes us see things as they are not sometimes.

 

[Seryn]

Sorry you're going through this. I'm having similar in my legs. I am driving myself mad constantly checking and feeling something different everyday. I can't stand that my anxiety manifests physical symptoms. I can cope just about with thoughts but when I can physically feel things I am not imagining it messes with my head. I think when I hyperfocus on an area I am unknowingly tensing which creates the physical sensations. What I do know is eventually it will stop. I tend to hyperfocus on something roughly for 8-12weeks then it magically stops I get a few weeks and it's something else.

 

[Brandon713]

Sorry you're going through this. I'm having similar in my legs. I am driving myself mad constantly checking and feeling something different everyday. I can't stand that my anxiety manifests physical symptoms. I can cope just about with thoughts but when I can physically feel things I am not imagining it messes with my head. I think when I hyperfocus on an area I am unknowingly tensing which creates the physical sensations. What I do know is eventually it will stop. I tend to hyperfocus on something roughly for 8-12weeks then it magically stops I get a few weeks and it's something else.

That’s exactly where I am, hyperfocus. I focus on my body 24/7. Today I notice again the tip of my pink feels weird, like a numbing feeling. Are you still dealing with the physical sensations?

 

[MARCC]

My friends wife passed away at age 62, two years ago and her symptoms were nothing like yours.

 

[Seryn]

Yes I'm still getting bad physical symptoms that keep changing. The back of my legs felt tight when I bent them now that's stopped and just my left calf feels tingly. Have you had all your symptoms checked? Would it put you at ease if a Dr totally ruled out als?

 

[MARCC]

You have to try to remember that ALS is a pretty rare disease with only 5,000 or so cases diagnosed each year in the US. Cardiovascular disease and certain cancers have a much higher incidence.

 

[Brandon713]

My friends wife passed away at age 62, two years ago and her symptoms were nothing like yours.

I’m so sorry to hear about your loss

Yes I'm still getting bad physical symptoms that keep changing. The back of my legs felt tight when I bent them now that's stopped and just my left calf feels tingly. Have you had all your symptoms checked? Would it put you at ease if a Dr totally ruled out als?

My doctor have already ruled out als. The reason I keep worrying is because these new symptoms that keeps on coming up. For example, now the tip of my thumbs have weird feeling. They aren’t not numb but have an empty feeling to them and they still feel tight. My right ankle and foot feels really weak. I can still walk on my heels and tip toes. I’m a 320 lb man im about to to hope on 1 foot at a time.

 

[Canuck]

The reason I keep worrying is because these new symptoms that keeps on coming up. For example, now the tip of my thumbs have weird feeling. They aren’t not numb but have an empty feeling to them and they still feel tight.

What you describe aren't symptoms, they're feelings.

You don't have ALS. You started posting about these worries last December. If you had ALS, by now you would know and your doctors would know.

 

[Brandon713]

What you describe aren't symptoms, they're feelings.

You don't have ALS. You started posting about these worries last December. If you had ALS, by now you would know and your doctors would know.

I did another emg a few weeks ago and the doctor said no signs of als or neuropathy. It seems my pinky and thumb are getting worse. My pinky doesn’t hurt. It’s curling over really bad and move slower. My thumbs are still tight and having coordination issues. When my hands are still my fingers tends to move on their own.

 

[bin_tenn]

did another emg a few weeks ago and the doctor said no signs of als or neuropathy

That's all you need.

 

[AuntieDee]

Have u been checked for carpal tunnel ?

 

[Brandon713]

No

Have u been checked for carpal tunnel ?

No because I don’t have any pain. My fingers on my right hand separate from each other on their own. The feel very light. Both of my thumbs are tight and the motor skills feel off on both of my thumbs.

Have u been checked for carpal tunnel ?

Have u been checked for carpal tunnel ?

No because I don’t have any pain. My fingers on my right hand separate from each other on their own. The feel very light. Both of my thumbs are tight and the motor skills feel off on both of my thumbs.

 

[bin_tenn]

No


No because I don’t have any pain. My fingers on my right hand separate from each other on their own. The feel very light. Both of my thumbs are tight and the motor skills feel off on both of my thumbs.



No because I don’t have any pain. My fingers on my right hand separate from each other on their own. The feel very light. Both of my thumbs are tight and the motor skills feel off on both of my thumbs.

Pain isn't a common carpal tunnel symptom.

 

[Brandon713]

Pain isn't a common carpal tunnel symptom.

I thought carpel tunnel is in the wrist not fingers.

 

[AuntieDee]

I thought carpel tunnel is in the wrist not fingers.

It is in the wrist but it affects your fingers and rest of yr hand. The actual nerve is in your wrist but the constant swelling and pressure on the nerve creates various problems in yr hand.

 

[bin_tenn]

It is in the wrist but it affects your fingers and rest of yr hand. The actual nerve is in your wrist but the constant swelling and pressure on the nerve creates various problems in yr hand.

Exactly this @Brandon713 . I believe I have mild to moderate carpal tunnel, and have for years. I get all sorts of cramps, numbness, tingling, involuntary movements/twitches, etc in my fingers. I also have mild cubital tunnel syndrome AKA tennis elbow AKA similar to carpal tunnel but in the elbow. That one also causes all sorts of oddities with the hands / fingers.

 

[Sloth54]

What you describe aren't symptoms, they're feelings.

You don't have ALS. You started posting about these worries last December. If you had ALS, by now you would know and your doctors would know.

You are absolutely right! You can’t go that long with ALS and not know you have it. Also, ALS is not a sensory disease. In other words, you’re not going to feel numbness or twitching or tingling or cramps, etc. or anything like those. I was told that by a top neurologist.

 

[AuntieDee]

Exactly this @Brandon713 . I believe I have mild to moderate carpal tunnel, and have for years. I get all sorts of cramps, numbness, tingling, involuntary movements/twitches, etc in my fingers. I also have mild cubital tunnel syndrome AKA tennis elbow AKA similar to carpal tunnel but in the elbow. That one also causes all sorts of oddities with the hands / fingers.

“Tennis elbow”, carpal tunnel, “ trigger finger” repetitive movement syndrome, can all be part of extensive keyboarding or computer work amongst other things, and does have strange effects on hands and forearms. I’ve never heard of it being fatal but it can be painful and worrisome