Thank you Phillies Phan !I disagree Hobbit. Lyme is treatable, not catastrophic and was a good suggestion! Your post served a purpose.
Thank you Phillies Phan !I disagree Hobbit. Lyme is treatable, not catastrophic and was a good suggestion! Your post served a purpose.
Some of the symptoms you mentioned like intentional issues and ear issues are issues many on here have complained about. The fact is, anxiety affects the whole body, not just the mind. Your symptoms can easily be caused by the anxiety. If you were to take the time to educate yourself on how anxiety affects the body, it would offer you great insight into your health issues. But that’s up to you. We with anxiety chase many avenues in our quest to find out what is wrong with us instead of acknowledging that anxiety is truly the culprit in our physical issues. You would be surprised what anxiety is capable of doing to the body. But again, it’s your choice.I have various health issues (real ones, not anxiety) but no doctor can find the cause so they send my on my way. Yet, I continue to suffer. For instance I have severe intestinal issues that came on suddenly, out of the blue. Testing didn't show anything serious so I was told it's IBS. I have a neurological problem which has stumped the many doctors I have seen. None of them has ever even heard of my unusual symptoms and there really isn't a name for them so I'm told it's a migraine variant. Other problems are possible heart issues, inner ear issues, joint and muscle pain, rashes, plus many more. These are real problems and I'm at the point where I rarely leave the house for fear of one of these problems hitting me when I am away from the safety of my home. For the most part the specialists I have seen have not helped. They are concerned with only their specialty and no other body part. My GP isn't very helpful either, she'll send me for an x-ray or blood work, maybe refer me to a specialist, but there is never any resolution to any of my problems,
What kind of doctor does one go to get answers? I'm looking for a doctor who will connect the dots and see that I have problems all over the place. Maybe the problem is something systemic, not just one specific part of the body. I'm so tired of this, they deal with their part only and never even think to put all my symptoms together or even half of them. I have lost so much over all of these issues, I want to feel well again. I know something is wrong with me but I don't know how to go about getting answers. I leave every appointment feeling so defeated that someone else has shrugged their shoulders and said "I don't know." I have seen too many cases where a doctor has missed a disease, often something serious, and I'm afraid that is what is happening to me because they won't look outside the box.
I agree with you, but may I add? Educating ourselves about anxiety, how it can affect the body, is invaluable. So many of our symptoms can be attributed to anxiety. And we do need to work closely with our doc when it comes to symptoms.I’ve said it before and I’ll say it again. For people like us, we need to get an exceptional GP. One that we can be honest regarding our HA, and know they will take us seriously regardless.
We need to search for such a doctor as diligently as we would a new job or career, or a spouse/significant other. It’s that important.
Now once our efforts have worked to find such a GP, we need to trust her or him. Are they infallible? No. But we must accept that nothing in life is totally certain. We do the best we can to minimize uncertainty, but must accept that even still, it still exists. Such is life.
We need to trust when our GP tells us we do or don’t need imaging, or referral to a specialist, or when they say they have no concern over our bloodwork, even though a reading or two is out of range.
Not meant for Blueberries: This post has turned into one that I’m sure has triggered a few people, myself included. Looking at you Marc, sorry. Please consider not saying the one, way rare exception especially for something so common as back pain, headache and the like.
I can't believe doctors can't diagnose your problem. I thought science was so advanced these days. It must be utterly frustrating. I sometimes get frustrated with doctors and health practitioners in general. Sometimes they seem a slave to process thinking, instead of thinking outside the square. Laterally.I have various health issues (real ones, not anxiety) but no doctor can find the cause so they send my on my way. Yet, I continue to suffer. For instance I have severe intestinal issues that came on suddenly, out of the blue. Testing didn't show anything serious so I was told it's IBS. I have a neurological problem which has stumped the many doctors I have seen. None of them has ever even heard of my unusual symptoms and there really isn't a name for them so I'm told it's a migraine variant. Other problems are possible heart issues, inner ear issues, joint and muscle pain, rashes, plus many more. These are real problems and I'm at the point where I rarely leave the house for fear of one of these problems hitting me when I am away from the safety of my home. For the most part the specialists I have seen have not helped. They are concerned with only their specialty and no other body part. My GP isn't very helpful either, she'll send me for an x-ray or blood work, maybe refer me to a specialist, but there is never any resolution to any of my problems,
What kind of doctor does one go to get answers? I'm looking for a doctor who will connect the dots and see that I have problems all over the place. Maybe the problem is something systemic, not just one specific part of the body. I'm so tired of this, they deal with their part only and never even think to put all my symptoms together or even half of them. I have lost so much over all of these issues, I want to feel well again. I know something is wrong with me but I don't know how to go about getting answers. I leave every appointment feeling so defeated that someone else has shrugged their shoulders and said "I don't know." I have seen too many cases where a doctor has missed a disease, often something serious, and I'm afraid that is what is happening to me because they won't look outside the box.
I would think a very experienced internal medicine doctor would be the best bet if you can get in with one. I think they would have the most knowledge on all the body systems and whether or not your symptoms might be connected in some way.
I agree, a good doctor is so important, for everyone, but especially for those of us who need a little extra "care" in the doctor's office. It's hard though, we can't interview doctor's in the same way applicants for a position are interviewed. And most doctors aren't looking for new patients. Since Covid so many doctors near me have left the area or retired. I've tried calling several practices and they either aren't taking new patients or new patient appointments are six months out. I could try going the next town/city over but I really don't want to travel 30 minutes, especially if I'm sick. My old doctor's practice used to have 6 doctors and at least 3 NP's or PA's. They are now down to 1 doctor and 2 NP's.I’ve said it before and I’ll say it again. For people like us, we need to get an exceptional GP. One that we can be honest regarding our HA, and know they will take us seriously regardless.
We need to search for such a doctor as diligently as we would a new job or career, or a spouse/significant other. It’s that important.
Now once our efforts have worked to find such a GP, we need to trust her or him. Are they infallible? No. But we must accept that nothing in life is totally certain. We do the best we can to minimize uncertainty, but must accept that even still, it still exists. Such is life.
We need to trust when our GP tells us we do or don’t need imaging, or referral to a specialist, or when they say they have no concern over our bloodwork, even though a reading or two is out of range.
Not meant for Blueberries: This post has turned into one that I’m sure has triggered a few people, myself included. Looking at you Marc, sorry. Please consider not saying the one, way rare exception especially for something so common as back pain, headache and the like.
Actually, I was glad to hear you suggest Lyme. I wish my doctor would have pursued this instead of dropping it after 1 negative test. Other people have also thought this might be my problem. My guess is that I don't have Lyme, but the symptoms certainly fit.And i also apologize, i should keep my medical comments to myself . Especially Lyme Disease symptoms as they are vague and common , and i am certainly no doctor!
Thank you for your understanding!!I can't believe doctors can't diagnose your problem. I thought science was so advanced these days. It must be utterly frustrating. I sometimes get frustrated with doctors and health practitioners in general. Sometimes they seem a slave to process thinking, instead of thinking outside the square. Laterally.
Here's hoping you get a solution asap.
Just because someone's symptom is one that is also a symptom of anxiety doesn't mean that that person's symptom is definitely from anxiety. As I said before, no doctor has said my problems are because of anxiety. They acknowledge there is a definite problem, but they are unable to determine the root cause. This does not mean it comes from anxiety. I don't need to educate myself on how anxiety affects the body, I am very aware of how it does and I am also aware that my symptoms are not caused by anxiety. I need a doctor who can connect the dots and figure out what is wrong. It does a disservice to assume someone's issues are from anxiety and tell them so, especially when you haven't examined them and don't have access to their medical records.Some of the symptoms you mentioned like intentional issues and ear issues are issues many on here have complained about. The fact is, anxiety affects the whole body, not just the mind. Your symptoms can easily be caused by the anxiety. If you were to take the time to educate yourself on how anxiety affects the body, it would offer you great insight into your health issues. But that’s up to you. We with anxiety chase many avenues in our quest to find out what is wrong with us instead of acknowledging that anxiety is truly the culprit in our physical issues. You would be surprised what anxiety is capable of doing to the body. But again, it’s your choice.
I agree with you, but may I add? Educating ourselves about anxiety, how it can affect the body, is invaluable. So many of our symptoms can be attributed to anxiety. And we do need to work closely with our doc when it comes to symptoms.
This is a very complex and difficult subject. When is it anxiety and when not? So many doctors still do not believe in anxiety and the effect it can have physically. 'It's all in the mind'. Of course it is, but that does not make it any easier to bear. It happens that doctors will also misinterpret anxiety symptoms as not important and look for physical periblems. They are trained in physical sickness, and unless psychiatrists, have little idea of mental issues, unless they have been there themselves. We can only speak from personal experience.Just because someone's symptom is one that is also a symptom of anxiety doesn't mean that that person's symptom is definitely from anxiety. As I said before, no doctor has said my problems are because of anxiety. They acknowledge there is a definite problem, but they are unable to determine the root cause. This does not mean it comes from anxiety. I don't need to educate myself on how anxiety affects the body, I am very aware of how it does and I am also aware that my symptoms are not caused by anxiety. I need a doctor who can connect the dots and figure out what is wrong. It does a disservice to assume someone's issues are from anxiety and tell them so, especially when you haven't examined them and don't have access to their medical records.
Of course, and it is only sensible to get a physical check-up before being told it's anxiety. But so often the two can run together. Physical illness can cause anxiety. If we are apprehensive and waiting for test results it can all become too much. In anxiety it is so difficult to keep things in perspective.My physician told me that organic causes of symptoms need to be ruled out first before attributing their cause to anything else.
I would discount the doctor saying your chiari is too small to cause problems. Unfortunately this seems to be a common thing said by doctors, but the extent of the tonsillar descent does not necessarily correlate with the symptoms (you can have really low tonsils and no symptoms or a very 'mild' descent and severe symptoms). It is all to do with how the CSF flow is affected. Mine are only 4mm descended and I have a lot of symptoms and, like you, it affects my entire body.Hi Sairy, Unfortunately, nothing has changed for me. I continue to have strange symptoms and feel horrible everyday. I hate my life right now so much.
I have had a brain MRI and the only thing it showed was a chiari malformation but the doctor said it's too small to cause any problems. Whether or not that is so, I don't know. Some people say they have lots of problems with a small one. I have balance issues, swallowing problems, difficulty talking, hoarseness, vertigo, vision problems (all of which are chiari symptoms) plus more.
My lists of symptoms is probably as long as yours and involves just about every part of my body, even my toes which now and then get tingly/numb. Most are either abdominal or neurological. Latest is a continual discomfort in one area of my breast and I'm too afraid to go to the doctor for this one.
I wish I could find a doctor or who would listen to me, take me seirously,look at my body as a whole, and find out what is wrong with me.
Wow!! I've never known anyone who's heard of chiari, let alone actually have it. It would be such a relief to know this is my problem. I don't even want to bring it up again with my doctor at this point, last time he said the neurologist said it was too small so therefore I don't have it. Ugh. I've had several MRI's - for vertigo, severe headache, neck pain and stiffness, swallowing difficulties, other neuro problems which I can't even expain they are so weird. All of these are chiari symptoms yet another doctor I saw said I had no symptoms of chiari. I don't know the size of mine, I was told it was borderline. No, actually I wasn't even told about it, I was just told my MRI was normal. It wasn't until I got a copy of the report that I saw that I had this (just another reason I distrust doctors).I would discount the doctor saying your chiari is too small to cause problems. Unfortunately this seems to be a common thing said by doctors, but the extent of the tonsillar descent does not necessarily correlate with the symptoms (you can have really low tonsils and no symptoms or a very 'mild' descent and severe symptoms). It is all to do with how the CSF flow is affected. Mine are only 4mm descended and I have a lot of symptoms and, like you, it affects my entire body.
I would give the brain and spine foundation a call as they are very helpful. But yes, I have the same as you and I had a feeling you had a chiari like me. I am also in some chiari groups on Facebook and there are lots of other people going through similar. You are not alone.
My doctors have not been in the slightest bit helpful tbh. Everything I know about it has been through my own research after I had the MRI. Your symptoms absolutely sound like chiari. On the Facebook groups I'm on loads of people get told the same as you've been told by neurologists. Many even get told it's anxiety or "just one of those things." Here's the link to one of the Facebook groups I'm on:Wow!! I've never known anyone who's heard of chiari, let alone actually have it. It would be such a relief to know this is my problem. I don't even want to bring it up again with my doctor at this point, last time he said the neurologist said it was too small so therefore I don't have it. Ugh. I've had several MRI's - for vertigo, severe headache, neck pain and stiffness, swallowing difficulties, other neuro problems which I can't even expain they are so weird. All of these are chiari symptoms yet another doctor I saw said I had no symptoms of chiari. I don't know the size of mine, I was told it was borderline. No, actually I wasn't even told about it, I was just told my MRI was normal. It wasn't until I got a copy of the report that I saw that I had this (just another reason I distrust doctors).
Has your doctor been at all helpful with this? Have you had a cine mri?