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Als fear...

Colorado93

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Hi everyone. New to the group. I'm hoping to find comfort in a group of people who can understand what anxiety does. So I've dealt with neurological issues for most of my adult life. I am now 26 years old with 2 kids and have been dealing with episodic bouts of fatigue, dizziness to the point of not being able to stand, brain fog the list goes on... well I'm seeing a neurologist at Duke medicine who is amazing and has now sent me for another MRI bc they found some excessive white matter on my brain and it's possible its MS or something of the sort which at this point in my life I would be okay with. But back in January I had a debilitating bout of dizziness and fatigue I had never experienced. I was literally on the couch for a week unable to go to work or really do anything that I normally do and waited it out. I lost about 30 pounds in a month and it's been a downward spiral. But nownive begun to twitch all over my body from my feet and calves to my abdomin and it's becoming more constant as well as a shortness of breath and tightness in the right side of my chest. Long story short (or I suppose long) I am terrified of Als. My left leg seems substantially smaller than my right and I feel like I'm losing muscle mass all over. I'm unable to gain the weight back to my presickness amount and am essentially in panic mode. I am exhausted and all the tests just keep coming back normal and I'm at the end of my rope. I guess I'm asking for some reassurance of anyone who has gone through anything similar and also if anyone has MS or something of the sort and had a similar experience I would be so happy to hear your journey. I'm in a pretty rough place and becoming a burden on my wife and kids. Thanks.
 

Kkmom

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I was so stressed and had high anxiety for so long I felt like I was walking on a boat couldn’t go shopping w out feeling way off balance and twitching all of which calmed down after I stayed calm for about a month and got back to baseline.... that may be all that you have. I have small kids too and work a lot plus just wired to worry. You don’t realize you’re staying in that anxious state
 

Colorado93

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How did you get back to baseline if you dont mind my asking? I try to meditate and stay calm but it doesnt seem to help much...
 

TenLettersRap

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Hi everyone. New to the group. I'm hoping to find comfort in a group of people who can understand what anxiety does. So I've dealt with neurological issues for most of my adult life. I am now 26 years old with 2 kids and have been dealing with episodic bouts of fatigue, dizziness to the point of not being able to stand, brain fog the list goes on... well I'm seeing a neurologist at Duke medicine who is amazing and has now sent me for another MRI bc they found some excessive white matter on my brain and it's possible its MS or something of the sort which at this point in my life I would be okay with. But back in January I had a debilitating bout of dizziness and fatigue I had never experienced. I was literally on the couch for a week unable to go to work or really do anything that I normally do and waited it out. I lost about 30 pounds in a month and it's been a downward spiral. But nownive begun to twitch all over my body from my feet and calves to my abdomin and it's becoming more constant as well as a shortness of breath and tightness in the right side of my chest. Long story short (or I suppose long) I am terrified of Als. My left leg seems substantially smaller than my right and I feel like I'm losing muscle mass all over. I'm unable to gain the weight back to my presickness amount and am essentially in panic mode. I am exhausted and all the tests just keep coming back normal and I'm at the end of my rope. I guess I'm asking for some reassurance of anyone who has gone through anything similar and also if anyone has MS or something of the sort and had a similar experience I would be so happy to hear your journey. I'm in a pretty rough place and becoming a burden on my wife and kids. Thanks.
i want you to get on youtube and look up Dr. Terry Wahls.. because theres a solution.. God bless and do what she says and you will be ok
 

TenLettersRap

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and yes i've gone through this and would call off of work or go to work and risk my job hiding somewhere so i can sleep in the floor. im almost 4 weeks into this Wahls Protocol and im back to starting work when i get to work, im not 100% but i know this healing is real and taking place in my body through the functional medicine approach, which is eating right.
 

Kkmom

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How did you get back to baseline if you dont mind my asking? I try to meditate and stay calm but it doesnt seem to help much...
I had to get rest, take naps, take clomanzapam sp? Yoga, take breaks away from my kids and work etc.... I found myself when even typing this I hold my breath which triggers your brain for fight or flight.... there’s a girl I found on YouTube that really helped me because her symptoms were so much like mine and what sounds like yours. I’ll try and send to you. I think we learn to be anxious and it’s a hard cycle to break. I tried doing it w out meds and just couldn’t. I’m thankful for them....
 

Kkmom

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I’m trying to send you the YouTube file but it’s not letting me is there a way I can message you my number and me text it to you? I’ll see if I can just type in the info....
 

Kkmom

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Google Christine Yeong you tube anxiety symptoms explained. You need to watch her very first vlog.... and then she posts others but the first sounds like your symptoms. She also plays guitar so that sometimes comes up instead lol that’s why I was going to try and post the pic but let me know if you find her.... made me feel so much better when I watched her videos from self experience about hyper stimulation in brain and body...
 

Colorado93

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Great I'll check it out! I'm terrified of anxiety meds. I take amitryptiline now for anxiety/depression and stomach issues and it helps me sleep a bit better but I wonder if its fueling some of the twitching. It's hard to find time when the stresses of providing for a family take the front seat as I'm sure you are very aware of! I'm trying to take some time to myself and I recently quit my job so I could be at home and do something a bit less strenuous. I'm hoping to slowly restore my strength and work my way up. My neurologist has also mentioned chronic fatigue syndrome so I'm kind of confused as to the best approach. I'll definitely check out the YouTube videos though and try to decompress some. Thank you for your replies!
 
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