• Welcome to the Anxiety Community Forum, a friendly space for discussion, help and support with mental health issues. Please register to post and use the extra features available to members. Click here to register.Everyone is welcome!

Struggling so bad.... anyone with ALS knowledge please

suzzeeb

Active Member
Joined
Sep 5, 2020
Messages
290
Reaction score
75
My doctor did not order blood work, and I still have them pretty much every day. I did just have a nerve conduction study/EMG on my left arm because of a pinched nerve in my neck. They said it was totally normal. I don't know if that would be enough of a test to show anything, but I do have twitching in that arm too and it was normal. I don't have weakness or anything else, so I don't really worry about it. I would think I would have other symptoms by now.
 

Bearcat999

Member
Joined
Nov 19, 2019
Messages
74
Reaction score
56
May God Bless you for all the work you have done. Just reassuring us through your comment is a blessing on its own.
,Thank you. It's just when I see people worrying about twitching/ALS I want to say "NO< NO< THAT"S NOT HOW IT WORKS"!
Although I was guilty of that too. When I started noticing a lot of twitching, and went in to see my Dr., after losing my brother, he put it very clearly, "ALS is about failure, not feeling".
 

Kaylab3

New Member
Joined
Nov 24, 2020
Messages
12
Reaction score
4
Thank you all for your info.... I am going on 8 months of twitching all over...... I try to tell myself that i would probably have some serious issues by now, right?
 

Bearcat999

Member
Joined
Nov 19, 2019
Messages
74
Reaction score
56
Thank you all for your info.... I am going on 8 months of twitching all over...... I try to tell myself that i would probably have some serious issues by now, right?
Kaylab, you absolutely would have. As I said, EVERYONE has twitching. (I've had a good one going on in my shoulder and thigh for about a week.) Once you get the ALS thought in your head, you become hypersensitive/hyperaware of every single twitch.
 

Kaylab3

New Member
Joined
Nov 24, 2020
Messages
12
Reaction score
4
Thank you
Kaylab, you absolutely would have. As I said, EVERYONE has twitching. (I've had a good one going on in my shoulder and thigh for about a week.) Once you get the ALS thought in your head, you become hypersensitive/hyperaware of every single twitch.
thank you bearcat. It’s so hard once the thought is there. I tend to think maybe this is the slow development of it........ I’m sorry for your personal loss but I am grateful for your first hand wisdom—- much better than internet stories.
 

Kaylab3

New Member
Joined
Nov 24, 2020
Messages
12
Reaction score
4
Thank you

thank you bearcat. It’s so hard once the thought is there. I tend to think maybe this is the slow development of it........ I’m sorry for your personal loss but I am grateful for your first hand wisdom—- much better than internet stories.
 

bigjetplane6

Active Member
Joined
Aug 28, 2020
Messages
774
Reaction score
136
ALS - Theres no such thing as “i am having trouble picking up the pencil from the floor”
it’s more like “i can’t pick up the pencil at all. i lost all ability”
it’s totally black or white area. there’s no gray area in between
 
Top