SEVERE HA MS/ALS TWITCHING FEARS

[Njay123]

I've had HA for a long time and my ms 'symptoms' seemed to start after my dad was diagnosed with ms 10 years ago. It all got worse in feb/march this year when i started getting strange creepy crawly feelings in my thigh and then i started getting twitching mainly in my leg at first. I googled it and the ALS hell started, I started twitching all over including my lips eyelids arms and legs. I also read about tongue symptoms then a week later got strange feelings in my tongue and i'm sure it twitches from time to time. Over the last 7 months i've had joint pain and muscle pain as well in different places. I've paid private to see two neurologists who don't think it's ALS and got a lot of bloods done that were clear but i still can't shake the ALS fear. My health anxiety is out of control and i feel so unwell mentally and physically and still twitch but it has eased, it just feels like one strange neurological symptom after another and docs think its all my anxiety. Has anyone else had this problem

 

[matisworried]

i went through a very similar situation following an abnormality found on an mri done for a completely unrelated reason. I've posted about it several times on the board. the long and short of my story is that i googled, convinced myself i had ms/als, started developing symptoms like crazy, got a follow-up scan a year later, found out i was fine and then all my symptoms magically vanished. the mind is a crazy thing. the fact that you read about the tongue stuff and then suddenly developed the symptom isn't a coincidence.

please read this. it may ease your mind:

Muscle Twitching Help; Foot Drop Strength Tests & ALS

If you have muscle twitching and have googled twitching muscles, you’ve most likely stumbled upon some links for the deadly disease ALS. You now might think you have ALS, since muscle twitching is a symptom of …

scarysymptoms.com

 

[TenLettersRap]

i've been having all this for the past 9 months now...i measure my muscles regularly and everything is the same.in the beginning i was so sure, because i felt so week and tired all the time. i couldnt workout, my legs felt like jello, i couldnt stand for very long. i started eating healthier, then i started working out again, slowly building strength back up. At about the 6 month mark i had an MRI done and came up clear, 5 or so blood tests came back normal, Nuerologist says its not ALS or MS. i always have doubts though.. but after the mri results came back, and my neuro said he cant find anything. I told him im done then. im done stressing over the next appointment, the next test result, the anxiety makes it all worse. for 4 months i would go to work find a place to hide and sleep most of my shift. i came back from all that. i still twitch everywhere but im functional.. i can run, jump, do pull ups, situps, pushups, bench 145 lbs reps..i will pm you shortly as well with some info

 

[TDS74]

I've had HA for a long time and my ms 'symptoms' seemed to start after my dad was diagnosed with ms 10 years ago. It all got worse in feb/march this year when i started getting strange creepy crawly feelings in my thigh and then i started getting twitching mainly in my leg at first. I googled it and the ALS hell started, I started twitching all over including my lips eyelids arms and legs. I also read about tongue symptoms then a week later got strange feelings in my tongue and i'm sure it twitches from time to time. Over the last 7 months i've had joint pain and muscle pain as well in different places. I've paid private to see two neurologists who don't think it's ALS and got a lot of bloods done that were clear but i still can't shake the ALS fear. My health anxiety is out of control and i feel so unwell mentally and physically and still twitch but it has eased, it just feels like one strange neurological symptom after another and docs think its all my anxiety. Has anyone else had this problem

Hello and welcome! I am currently doing through the same situation. It went from MS to ALS to now going thru tests for Lupus. It's onw weird neurological issue after another and it's very scary. This summer got so bad for me I couldn't eat or sleep. Now it's my throat giving me
Sorry for the grammar errors.. But what I am trying to say is that I have been having same issues since end of May. They have calmed down some, but i still twitch daily in all parts of my body. I have additional issues now and as of now, no answers. Good luck I can totally relate to the fears and the symptoms.