Muscles tight cramps, twitching, fatigue

[Caecus]

Many people that suffer from bfs also reported cramping and tingling.. I had cramping before, now not anymore.

Also soreness, fatigue, joint pain...

 

[TenLettersRap]

theres so many things it could be..my newest symptom is my leg buzzing like a cell phone is on vibrate in my leg... your neuro tested, its not als...i'd say just push on..my arms cramp up a lot if i squeeze or grip things too long.. if i rest my elbows on arm rests of a chair my hands tighten up and move involuntarily.. im kinda glad i have more symptoms and no real weakness, i can deal with anything else..

 

[Caecus]

No ms, als, neuropathy, fibromyalgia, chronic lyme disease. Psychosomatoformn disorder aka chronic anxiety..

 

[Worriedmama]

No ms, als, neuropathy, fibromyalgia, chronic lyme disease. Psychosomatoformn disorder aka chronic anxiety..

This was very comforting to watch, thank you for making this video. I think a lot of us needed that. Btw, my two year old was watching with me and he ran to put on a hat cause he liked yours so much

 

[BenO]

theres so many things it could be..my newest symptom is my leg buzzing like a cell phone is on vibrate in my leg... your neuro tested, its not als...i'd say just push on..my arms cramp up a lot if i squeeze or grip things too long.. if i rest my elbows on arm rests of a chair my hands tighten up and move involuntarily.. im kinda glad i have more symptoms and no real weakness, i can deal with anything else..

Ive actually had this happen to me throughout this past year could never figure it out.

 

[BenO]

Also thanks for the feedback guys it really helps with the anxiety..... my plan is nutrition, light exercise, find out if I have excess heavy metals in my system, detox , follow up with neurologist and prayer. Not sure what else to do at this point. Have any of you had EMGs done after symptom onset?

 

[Caecus]

yes.I did mri of head and neck with symptoms full destroying me and complete emg.all clear
from neurologist i was transferred to psychiatric, but it wasn`t enough for me so i did also bunch of tests in private clinics.

at one point i was sure i had chronic lyme without knowing or remembering any bite or bullseye rash. that lyme community was having big propaganda and they were full over the internet and hypochondric forums, so i fall for that. but it`s bunch of quacks...

 

[BenO]

Oh wow yea I had the lyme test done it was negative. The human body is strange and so is modern medicine . We know a lot less than we think.

 

[TenLettersRap]

i didnt have an emg, i had a nerve conduction test and an ssep.. both of which suggested i have polyneuropathy but no identifiable cause

 

[BenO]

Wow brave man no EMG haha I used to think I was until all of this hit but yea have to take it as it comes I guess .....Crazy how no cause is an answer in 2020 lol I have a follow up with my neuro on the 21st Ill keep yall posted. Also are you guys supplementing with anything? I started a month ago on evrything that I could find that lowers oxidative stress and anything that has shown to exhibit neuroprotective properties. Ive been pretty careful as far as checking interactions. I mean IDK whats wrong with me but doing something always feels better than doing nothing!

 

[TenLettersRap]

Wow brave man no EMG haha I used to think I was until all of this hit but yea have to take it as it comes I guess .....Crazy how no cause is an answer in 2020 lol I have a follow up with my neuro on the 21st Ill keep yall posted. Also are you guys supplementing with anything? I started a month ago on evrything that I could find that lowers oxidative stress and anything that has shown to exhibit neuroprotective properties. Ive been pretty careful as far as checking interactions. I mean IDK whats wrong with me but doing something always feels better than doing nothing!

well i told my neuro, since he said i dont have als and i dont have ms im not seeking any further answers, but like you said i have been studying what does and doesnt harm nerves as far as nutrition and even environment. i spend large amounts of time reading studies on pubmed about neuroprotective elements... one of the best i've found outside of the typical dopamines is L-Serine, but i always keep in mind the synergistic properties, the balance and how things all work together and that there isnt just one thing you can take or increase that will yield results... everything requires balance.. for example meats have high iron, but since im currently on carnivore diet, raw dairy has the best calcium source to balance iron intake, and k2 is important in a few things like vitamin d3, and calcium metabolism.

 

[BenO]

K2?

 

[TenLettersRap]

K2?

its in egg yolks, kefir, grass fed whole cow milk,butter, liver, and bacterial fermented foods.

 

[BenO]

Oh nice !, i actually do raw eggs in the morning. Right now I do OPC antioxidant first thing on empty stomach along with multivitamin. Then about 15 min later i do a mini shake with half serving of L-serine, L-Theanine, Acetyl-L Carnitine with a little hemp protein, a raw eggs, cilantro, barley grass , fresh berries and grannysmith apple.
An hour later I do a big shake with lots of kale, berries, an avocado, a raw egg, hemp protein, small amount of pea protein, cinnamon, flax seed, and I add taurine, half serving of AAKG, and NRF2 activator which contains curcumin,EGCG, pterostilbene, broccoli and radish seed, black pepper extract.
At lunch ill eat vegetables and chicken or turkey or fish and Ill do alpha-lipoic acid. And do the other half of the L-serine. I also take the other half serving of the AAKG.
Dinner is the same meat and vegetables and I do the OPC again as well as turmeric. Sounds like a lot I know but since Ive been doing it I havent had any episodes of extreme fatigue where I cant even function so thats a plus, also decreased muscle twitching as well as what seems like an improvement in hand dexterity and coordination. Also nothing seems to be getting worse. Everything vegan organic. Been doing it for about 30 days now.

 

[BenO]

Also probably going to do NAC with glutathione after dinner instead of the OPC

 

[TenLettersRap]

Also probably going to do NAC with glutathione after dinner instead of the OPC

make sure you do vitamin c with your glutathione, and not orange juice or anything with sugar.. the sugar in oranges prevents vitamin C absorption... also you should do your egg yolks raw,egg whites cooked, egg whites have avidin which blocks biotin..and if you eat any nuts soak them, helps remove lectins, or even better..boil them

 

[BenO]

make sure you do vitamin c with your glutathione, and not orange juice or anything with sugar.. the sugar in oranges prevents vitamin C absorption... also you should do your egg yolks raw,egg whites cooked, egg whites have avidin which blocks biotin..and if you eat any nuts soak them, helps remove lectins, or even better..boil them

Got it thanks ! Crazy the small things that can impact other things . You seem to have a lot of knowledge on diet .... so if you are only eating meats do you supplement for everything else?

 

[TenLettersRap]

Got it thanks ! Crazy the small things that can impact other things . You seem to have a lot of knowledge on diet .... so if you are only eating meats do you supplement for everything else?

i eat nose to tail, organs, brain, tongue, marrow of all animals, 100% grass fed/pasture raised/ wild caught.. everything is nutrient balanced because what i eat is either fed its natural diet or eats it from the wild its caught or hunted from.. that being said.. the only nutrient thats difficult on this diet is vitamin C.. i used to be on a modified paleo diet when i started having really bad symptoms of weakness and fatigue. and it helped a lot but after a while i started having other weird symptoms again.. so after researching anti nutrients i decided to try cutting out plant foods for a while

 

[BenO]

Man I wish these symptoms would let up! How are you all doing?

 

[TenLettersRap]

just dealing with it, staying busy, occupying my mind. physical activity and playing xbox are all i can do on this quarantine crap