Huge hypochondriac/14 years old/soon to be diagnosed with some condition/need help

[BigMike2004]

Hello all!

I’m Michael, and I’m 14, soon to be 15. Anyways I’ve been anxious about my health since seventh grade. I’d had a panic attack in which I was worried I was having a stroke. I credit that presumption to my unnecessary medical knowledge haha. Regardless, ever since I’ve struggled with health anxiety. Every week it was something new! Tetanus, tuberculosis, AFib, even cancer! Anyways I had mostly overcome it by the beginning of ninth grade. Now I’ve finished ninth grade and new problem has arisen.

Ever since sixth grade, I had these inflammations on my right clavicle and right tibia. And every couple months I’d have a flare up of intense pain in one of the sites of inflammation, sometimes both at the same time. Doctors would look at it and think it was growing pain or something like that. My blood was normal and other than the pain so was everything else. Recently I had an MRI done and they now think I have CRMO, an autoimmune bone disease that causes inflammation. However, it’s a diagnosis of exclusion, meaning they have to exclude everything else to diagnose me. That includes cancer.
Cancer.
What a word.
I have a biopsy scheduled on the 24th of June. As you can imagine I’m worried out of my mind, mostly irrationally, I hope. The doctors are really confident it’s not cancer. However my mind tends to construct its own vision. I recently bruised an area close to my tibia inflammation, and it bruised quite easily, my first thought is, “Wow, some cancer must me eating my bones and making them bruise!”
I worry about not being able to a live a somewhat full life, or not being able to achieve my prime. It doesn’t help that CRMO, which I encourage everyone to research, is very rare and relatively untreatable. I’m asking for some support or advice, maybe even a medical opinion! Anything helps!

Thanks, Michael.

 

[Cuchculan]

Your mind will always think the worst. That is common. Just read any other posts on this forum. See the amount of things people assume they have. That is their mind telling them this. Along with the odd bit of mild pain here and there. The mind takes that bit of mild pain and turns it into something much bigger. Something it is not. you are bound to worry in advance of your biopsy. Everybody would. That is just normal fear. Even a person without anxiety issues would worry. Up until it is done there is nothing you can really do. For me the worry would be the wait for the results. Have had many tests before. Not a bother at all. Until I had to sit around and wait for the results. Mostly I tell myself ' what can I really do '. Here's hoping for the best. You have your whole life ahead of you.

 

[BigMike2004]

Your mind will always think the worst. That is common. Just read any other posts on this forum. See the amount of things people assume they have. That is their mind telling them this. Along with the odd bit of mild pain here and there. The mind takes that bit of mild pain and turns it into something much bigger. Something it is not. you are bound to worry in advance of your biopsy. Everybody would. That is just normal fear. Even a person without anxiety issues would worry. Up until it is done there is nothing you can really do. For me the worry would be the wait for the results. Have had many tests before. Not a bother at all. Until I had to sit around and wait for the results. Mostly I tell myself ' what can I really do '. Here's hoping for the best. You have your whole life ahead of you.

Thanks! I really appreciate it! I practice yoga and meditation in trying to calm my anxieties. I guess my worries are amplified due to my previous issues regarding my mental health. You’re totally right, it’s just a waiting game!