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Horrible pain in hands and legs - my life is miserable

JustMe

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Thank you for your concern.
I didnt get the results unfortunately.
Tomorrow is the day I guess.
I am going to sleep I hope I won't wake up sweating tonight.


I dont think they will look t3 and t4 in my blood just the regular TSH.
Ughh well it's not too much longer until tomorrow! Hang in there!
 

Alice91

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Thank you.
1:12 am and awake again ugh..i was a really good sleeper before.
Feels like my bones are on fire so scary.
 

Alice91

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Sooo I asked and the blood test isn't fully ready yet.. :mad:
But the total white blood cell count is OK, reference is 3,9-5,3 and mine is 4,6 :)
And red blood cells are also ok.
So I guess I don't have leukemia because that would show major differences in these.

Next move is the brain MRI on 20th of February and then my neuro appointment. I hope that will be ok too but I also hope doctors can do something about these burning bone pains because it's crazy. And of course my brain tells me that the only remaining answer to all of this is bone cancer. Being a hypochondriac is a never ending story I guess.
 

Erin_Liz

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I found out last year that i have something called Raynauds. When it first started I had burning pain in my feet and legs. Since I had no idea what was going on I got horrible anxiety over it and it made things 100× worse. I went to the doctors and they did a whole panel of bloodwork to rule out any autoimmune diseases and such. Apparently it's pretty common, especially in women and it starts around age 30. (I'm 31)
Keep us posted!
 

Ms.Honey

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I found out last year that i have something called Raynauds. When it first started I had burning pain in my feet and legs. Since I had no idea what was going on I got horrible anxiety over it and it made things 100× worse. I went to the doctors and they did a whole panel of bloodwork to rule out any autoimmune diseases and such. Apparently it's pretty common, especially in women and it starts around age 30. (I'm 31)
Keep us posted!
I have this too
 

Alice91

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I read about Raynaud but I dont have different colors on my skin... isnt that supposed to be the main symptom?

Ah guys I am so upset I scehduled an appointment to a rheumatologist/immunologist. I am 1000% sure I have some kind of cancer. I can not concentrate on anything I am scared so much.
Why do I do this to myself?

If this one will be a false alarm my next step is a therapist. But it seems impossible that this is not THAT disease.
 

Ms.Honey

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I read about Raynaud but I dont have different colors on my skin... isnt that supposed to be the main symptom?

Ah guys I am so upset I scehduled an appointment to a rheumatologist/immunologist. I am 1000% sure I have some kind of cancer. I can not concentrate on anything I am scared so much.
Why do I do this to myself?

If this one will be a false alarm my next step is a therapist. But it seems impossible that this is not THAT disease.
My toes go purple sometimes in the cold, or if I get in a hot bath with cold feet- that’s really the only colour change I have noticed
 

Alice91

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My toes go purple sometimes in the cold, or if I get in a hot bath with cold feet- that’s really the only colour change I have noticed
I didn't notice anything like that at all.


But I still have night sweats every single night :(
And the bone pain persists as well... I constantly feel a need to cough and my back hurts.
On wednesday I'm going to a rheumatologist.
What do you suggest should I mention to him that I am afraid of cancer? Actually I think its some kind of a bone/lung metastases from somewhere.
 

Scared1234

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I didn't notice anything like that at all.


But I still have night sweats every single night :(
And the bone pain persists as well... I constantly feel a need to cough and my back hurts.
On wednesday I'm going to a rheumatologist.
What do you suggest should I mention to him that I am afraid of cancer? Actually I think its some kind of a bone/lung metastases from somewhere.
I would suggest telling the dr exactly what you’re worried about. I used to hide what was worrying me and then worried that I didn’t give enough info for the dr to rule out my concern. Now I tell the dr what my concern is and ask how concerned I should be. I feel like it allows for me to have a more honest conversation versus skating around my concerns, if that makes sense. It’s hard for me to be that blunt with a dr, but it’s helped me feel more at ease. Good luck!
 

Alice91

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I would suggest telling the dr exactly what you’re worried about. I used to hide what was worrying me and then worried that I didn’t give enough info for the dr to rule out my concern. Now I tell the dr what my concern is and ask how concerned I should be. I feel like it allows for me to have a more honest conversation versus skating around my concerns, if that makes sense. It’s hard for me to be that blunt with a dr, but it’s helped me feel more at ease. Good luck!
Yes that makes sense 100%, thank you very much.
 

Alice91

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I am here again to confess :rolleyes: :)
So I saw a rheumatologist this week and he said that since my blood work is ok he thinks I dont have any serious thing going on and I should take some anti-inflammatory drugs.
I know I know that not believing in doctors is part of health anxiety but.... he didnt really care... it was such a rushed meeting.

So I went back to my GP almost crying that I have night sweats, bone pains and now no appetite so I need a solution!! I really dont know what the GP thinks of me... he said this problem seems "complex". Whether he meant I am a total hypochondriac/or someone walking with a deadly disease...i dont know.

But he ordered another blood test.. a bigger one. And a chest xray since I have dry cough.

I hope they will not find anything but at the same time I am sure that they will...
I also hope that in the end this topic will turn out as a typical hypochondriac flare up :doctor:
 

Glassgirlw

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So my mom has Fibromyalgia and she complains of a lot of the symptoms you’re complaining of. I’m not saying you have it, but if you do, it’s very manageable with meds. Unfortunately there is no real definitive “test” for it (bloodwork and the like), it’s more a diagnosis of omission. They’ll rule out everything else first.
 

Alice91

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So my mom has Fibromyalgia and she complains of a lot of the symptoms you’re complaining of. I’m not saying you have it, but if you do, it’s very manageable with meds. Unfortunately there is no real definitive “test” for it (bloodwork and the like), it’s more a diagnosis of omission. They’ll rule out everything else first.
Thank you for the tip fibromyalgia came across my mind as well... Yes I guess I need to wait for the test results to rule out other things.
 

Alice91

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Hi guys I got my blood test results and I will take it to the doctor tomorrow.
It seems like my B12 vitamin is way too low...
I hope this is the reason behind all my strange symptoms!!
 

Ms.Honey

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Hi guys I got my blood test results and I will take it to the doctor tomorrow.
It seems like my B12 vitamin is way too low...
I hope this is the reason behind all my strange symptoms!!
Ask for shots of b12! I went through a time when I had to get them a lot- that was actually when my panic disorder started, lack of b12 can definitely cause big time anxiety, and your symptoms- this is great news, that’s an easy enough fix :)
 

Worriedmama

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Hi guys I got my blood test results and I will take it to the doctor tomorrow.
It seems like my B12 vitamin is way too low...
I hope this is the reason behind all my strange symptoms!!
So happy to hear that! I agree with the b12 injections, my coworker sweated by them. Deficiencies can cause some nasty symptoms, glad you found the root cause!
 

Alice91

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Thank you guys I really appreciate your support!
We'll see but I am really hopeful at the moment.. this has to be IT. The root cause.
 
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