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Hormones Making Me Sick??

FinneousRex

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Let’s have a discussion about the birds and the bees.... just kidding. But hear me out and let me know what you think:

I am 24 years old, female. I have had hormonal issues since I was very young. When I was 11, I got my first period, then immediately began skipping periods after that. I’d go 3-6 months without having a period. I’ve always had some sort of anxiety growing up, but it was manageable for the most part. When I was 17 I got on hormonal birth control and was told that I might not ever be able to get pregnant due to whatever hormonal issues I had going on (which is fine with me! I don’t plan on ever having kids anyway). Since I got on birth control (I’ve been on the same one for years) I feel like I’ve changed a lot.

I didn’t really put two and two together until recently. But I am having CRIPPLING anxiety and panic. Maybe some light depression. But what I’m dealing with is absolutely crippling and it’s getting worse and worse every year. Like I’ve been on a steady decline downwards and I haven’t been able to get myself up in years. So this all isn’t new. I have anxiety every second of every day. I did journaling for 2 weeks (at my therapist’s recommendation to see if there were patterns in my anxiety) and the only pattern was it was constant for those 2 weeks and there was only 2/14 days where I had a couple hours of “normal ness”. I am seriously terrified of being disabled due to my anxiety... and no, that’s not an irrational fear, it is getting to that point and I’m absolutely terrified.

I am on Sprintec birth control.

I’m thinking that whatever hormonal issue I have, I kind of masked with the birth control, but I’m thinking the birth control is what’s making me feel crazy. I do have a family history of women on both sides of my family having anxiety/panic, but what I’m going through is absolutely disheartening. My mom also told me that my grandmother couldn’t take birth control because it made her crazy. It is scaring the crap out of me what I’m dealing with though, I don’t even know who I am anymore.

I’ve been getting my birth control through the online birth control provider for the past year and a half because I went through lapses of not having insurance and I moved to a new state. So it’s been about 1.5 years since I’ve seen a gyno. No sexual activity or anything in 4 years.

I think I have confused “getting older anxiety” and “anxiety being caused as a side effect”. When I was 17, I thought it was all normal. I was going into my senior year, started dating and then was looking at colleges. Never mind all of my home issues I’ve had over the years. So it would make sense that I would have anxiety. But, it’s been 7 years now, and I have been spiraling down since.

I also strongly believe I have PCOS, as I have every single symptom of it, and I’ve had the symptoms my whole life. But again, no one even tried to test me for it because I wasn’t complaining of hormonal issues since I went on birth control, as it regulated my periods and everything.

I will be getting health insurance in 2 months after my 90 days are over. And at that point I will go and see a gyno and a PCP and hopefully get some answers. But in the meantime I think I am going to discontinue my birth control and see what happens. There is NO away it can be worse. It is just not possible. I am literally suffering right now. I don’t throw the word “suffering” around lightly...

Can anyone tell me about their experience with hormonal birth control? Especially Sprintec (also called Ortho-cycline)?

Also, please add any information about PCOS if you have it, too, as that would be super helpful.

Thank you guys!
Also, would you guys be opposed to me kind of using this thread as a journal updating how it feels to get off the pill? Might be helpful for me and other people who are going through similar things.
 

Bobnnat

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I’m male but as for journaling, yes please use that. I hope it’s helpful. Were here for you. I look at fellow sufferers as family.
 

FinneousRex

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I’m male but as for journaling, yes please use that. I hope it’s helpful. Were here for you. I look at fellow sufferers as family.
I appreciate that. Thank you for taking the time to respond, my threads don’t tend to get much traction on here, so I do appreciate your kind words.
 

JustMe

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I've been put on that when I was younger around 17 for idk what reason the dr gave me. Maybe to regulate my cycles? Anyways i would never take birthcontrol pills now or anything that messes with my hormones. I stopped taking them back then and never restarted. They gave me bad headaches too. I've had bad anxiety since i was around 11. I was also on a crap load of anti anxiety medicine which I also stopped taking and have been medicine and axiety free for over 20 years until recently after going through a bad miscarriage. (Maybe hormone related too)
 

FinneousRex

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I've been put on that when I was younger around 17 for idk what reason the dr gave me. Maybe to regulate my cycles? Anyways i would never take birthcontrol pills now or anything that messes with my hormones. I stopped taking them back then and never restarted. They gave me bad headaches too. I've had bad anxiety since i was around 11. I was also on a crap load of anti anxiety medicine which I also stopped taking and have been medicine and axiety free for over 20 years until recently after going through a bad miscarriage. (Maybe hormone related too)
Yeah I’m really thinking it’s not doing good things for me. I’m gonna try to get off of them for a year and see what happens. Not like I’m gonna find a man anyway LOL no reason for me to be on them.
 

Souris

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I took birth control pills for many years to keep from developing excruciating ovarian cysts. I never had any problems on them. But going off them and going into menopause? Whooo boy, now THAT is doing a number on me with the hormones going out of control! Just shows how different people react differently to things.

I would definitely investigate the PCOS when you get your health insurance started and if you have it, get some treatment. I know that can really mess up your system, and maybe getting that sorted will make you feel better.
 

FinneousRex

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I took birth control pills for many years to keep from developing excruciating ovarian cysts. I never had any problems on them. But going off them and going into menopause? Whooo boy, now THAT is doing a number on me with the hormones going out of control! Just shows how different people react differently to things.

I would definitely investigate the PCOS when you get your health insurance started and if you have it, get some treatment. I know that can really mess up your system, and maybe getting that sorted will make you feel better.
I 100% agree with you, if it is PCOS and I get treatment... my life could be completely different. I just hate how things I can’t control on my own can be causing so much chaos. Like you can’t fix hormonal issues with a healthy diet and exercise and supplements. Not like I do any of those things... but if I did it wouldn’t help. Makes you feel kinda helpless.
 

chickentender

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You need to see a health care provider. Look for a planned parenthood or sliding scale clinic that can work with you on cost. Birth control makes certain things worse for some people such as anxiety and depression. If this birth control isn't working for you, something else needs to be looked into for balancing your hormones if you still have an imbalance. I wouldn't self diagnose PCOS. A health care provider can easily diagnose that for you though if you have it. I had to stop birth control because it exacerbated my depression before I had anxiety issues. After I developed issues with anxiety, it exacerbated both my anxiety and my depression. I'm actually surprised that even an online provider would continue dispensing medicine without a perscription having been written in a year and a half. I hope you feel better soon.
 

FinneousRex

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You need to see a health care provider. Look for a planned parenthood or sliding scale clinic that can work with you on cost. Birth control makes certain things worse for some people such as anxiety and depression. If this birth control isn't working for you, something else needs to be looked into for balancing your hormones if you still have an imbalance. I wouldn't self diagnose PCOS. A health care provider can easily diagnose that for you though if you have it. I had to stop birth control because it exacerbated my depression before I had anxiety issues. After I developed issues with anxiety, it exacerbated both my anxiety and my depression. I'm actually surprised that even an online provider would continue dispensing medicine without a perscription having been written in a year and a half. I hope you feel better soon.
Well I will have insurance in two months and then I definitely plan on going to an Obgyn to get looked at. Yesterday I stopped taking the pill. Hopefully will get some sort of relief. My issues more are on the anxiety/panic spectrum, not so much on the depression. If I’m crying it’s cause I’m worrying so much that my body doesn’t know what else to do lol which is very frequent.

With this online pill provider, you get a new prescription through an NP. Obviously there is no exam. But they ask you like two questions and then you can go through insurance or pay out of pocket. I was getting 13 months worth of pills for $67. For someone who isn’t having issues with the pill and has a hard time finding a clinic, this is a great option! Unfortunately for me it enabled me to stay on birth control that’s not working for me. But I am off now. Hopefully will see some sort of improvement within the next few weeks. Maybe I’ll lose some weight, too lol
 
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