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Singhy

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Hello everyone! Today is my first day here. I'm new to this forum and have been reading the threads for the past year or so. I have very high anxiety as well as hypochondrism, paranoia and PTSD. The reason I am writing is because I really need some support in many different areas of my life right now. There has been so much going on since 2012, and my conditions have worsened considerably.

The most prevalent of them all however is my health issue right now. It began almost 2 years ago, although I do remember bouts of it happening prior to August 2017. I suffer with constant tingling, mostly in my legs and feet, but I do have it also in other areas of my body. I really noticed it when I broke my foot in August 2017. I was a mess then, in constant panic mode, worrying if I was ever going to be able to walk again, but also not believing that the only thing wrong with my foot was that it was broken. I really believed I had something terribly wrong with my ankle (which I did, it was severely sprained). I noticed that my left leg (broken foot side) started to tingle. This raised my anxiety level higher than it was initially from the break. However, prior to this tingling episode in my left leg, I do recall tingling in my arms, both arms, right before I would get a hot flash. It has since progressed. By the way, the tingling feels like a vibration. Does anyone deal with this or has dealt with this?

Then I started to notice tingling in my right hand/wrist. Then tingling on the top of my head and on the right side behind my ear. Then ringing in my ears, both ears. A lot of crazy weird stuff happening. The I noticed a swollen lymph node. I ran to the ENT doctor and had it biopsied and it was benign, but why is it swollen? Now, I have this crazy tingling in both legs, constantly, everyday and night. It doesn't stop. I will admit it does get worse when I get anxious and I noticed it started when I had a very big scare.

Last August 2018, I thought I contracted HIV. I went for the initial testing and then had to wait 3 months to be tested again. During those months my anxiety was through the roof, skyrocketed. I really think I had a nervous breakdown during that time. Ever since then I've had this non stop tingling, pin prickling, weird sensations, muscle cramping and twitching going on. Also, during that time, I was on the Keto diet and part of my thinking believes this could be related to that as well. While I was on Keto, both my calves cramped up terribly at the same time. I really feel that might have contributed to what I'm experiencing now.

I just don't know and its driving me crazy. I have started a vitamin supplement regiment to see if I am deficient in vitamins. I have had my blood tested several times and I was low and/or high in the vitamin B's. I am going to see "another" neurologist on May 9th (not soon enough). I have already had a brain MRI which showed no signs of MS. I have not had the nerve conduction test yet but I do plan on it after seeing this new neurologist. A previous neurologist gave me Gababentin medication for neuropathy but I stopped taking it.

I feel like I am my own worst enemy. Did the Keto diet damage my nerves, did my anxiety damage my nerves? Do I have MS? I wish I could figure this out. This has been going on for almost 2 years now and I'm so tired and depressed. This is all just a tiny piece of what has been going on for almost 7 years :'(

Thank you all for taking the time to read through my mess and I apologize for the lengthy story but I just needed to tell someone. Thank you again.
 

triceps

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Hi and welcome Singhy. Sure seems you have a ton of anxiety symptoms going on. I have no idea how much your PTSD is contributing. I doubt the Keto diet has much to do with your sensations/symptoms so please don't beat yourself up over that. I certainly agree that awaiting HIV results would raise one's anxiety about as high as it can go. There are quite a few members here that have the same tingling and twitching symptoms. Remember that you have yet to have the extensive medical testing point to anything major.
 

Rosy

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You are not alone with the tingling in the arms legs and feet and head. I get that a lot. 4 yrs. ago I had the nerve neuropathy tests and the nerve conduction tests done and all came back negative. I was told it was probably anxiety. I don't seem to be bothered that much when I am not anxious. I know this doesn't give you an answer as to what else it could be but I just wanted you to know you are not alone. The people on here are great and everyone will try to help you .
 

Singhy

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Hi Triceps, thank you for replying and thank you for your support and input. As I mentioned, I see a new neurologist on May 9th and hopefully can get the nerve conductor test done soon thereafter if not the same day. Yes, anticipation of an HIV result is the worst experience I've ever encountered; however, I have learned that the percentage of HIV infections these days is very very low, but still scary as all hell. I even had some disbelief with the results of the test and had to buy my own in home test which came back negative. Being a hypocondriac is not fun. :(

I don't know if its mind over matter at this point, but I think maybe the vitamins are helping. I'm also drinking water with minerals and electrolytes (I did some research on vitamin and mineral deficiencies). Please keep me in your prayers that it is not something more serious. Problem is "google" is a blessing and a curse.

Hi and welcome Singhy. Sure seems you have a ton of anxiety symptoms going on. I have no idea how much your PTSD is contributing. I doubt the Keto diet has much to do with your sensations/symptoms so please don't beat yourself up over that. I certainly agree that awaiting HIV results would raise one's anxiety about as high as it can go. There are quite a few members here that have the same tingling and twitching symptoms. Remember that you have yet to have the extensive medical testing point to anything major.
Thank you Triceps
 

Singhy

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Hi Rosy, thank you so much for responding with your experience. I guess my body is always feeling anxious, even when I think I'm not anxious at all, or perhaps my body is producing too much of the fight or flight hormone (I forget the name), but anyway it is a relief to know that it very well can be the cause of anxiety. It really is horrible, because when I feel the tingling it heightens my anxiety even more :(

Just recently, this began in October of 2018, I noticed that I was getting puffiness around my eyes. The lids were getting puffy and I attributed it to possibly being too much salt intake. Then I noticed that my right eye looked droopy, but it was in fact the lid that was swollen. Shortly after the puffy lids issues I had a very bad sneeze attack, sneezed for probably a good 30-35 times, runny and itchy nose a bit of coughing and then, just as fast as it onset, it stopped and I felt my eyes filling with water and feeling funny. I looked in the mirror and the circles underneath both eyes were puffed out swollen beyond belief. I rushed myself to the emergency, they gave me some benedryl and in 2-3 days all was back to normal, but immediately following that episode I started to break out in red bumps all over my body which quickly became welts. This went on for weeks and then as mysteriously as it came on it mysteriously went away.

Do you think this could possibly be all from menopause?

You are not alone with the tingling in the arms legs and feet and head. I get that a lot. 4 yrs. ago I had the nerve neuropathy tests and the nerve conduction tests done and all came back negative. I was told it was probably anxiety. I don't seem to be bothered that much when I am not anxious. I know this doesn't give you an answer as to what else it could be but I just wanted you to know you are not alone. The people on here are great and everyone will try to help you .
 

Rosy

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Oh my God. That happened to me during menopause. The red welts on my skin and rashes. I stopped so many foods because I thought I was allergic to them. After a couple of years it went away. I still don't eat some things because I think I am allergic. But I don't think it was that at all. Just menopause. My skin is still sensitive. keep us informed on how you are doing.
 

Singhy

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Oh my God. That happened to me during menopause. The red welts on my skin and rashes. I stopped so many foods because I thought I was allergic to them. After a couple of years it went away. I still don't eat some things because I think I am allergic. But I don't think it was that at all. Just menopause. My skin is still sensitive. keep us informed on how you are doing.
Oh my :/ ...so annoying lol
 

Rosy

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Yes I still get the welts when the anxiety kicks up.
 

Hurt&Hopeful

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@Singhy welcome! I'm so glad you decided to join us after reading for so long. Hopefully it's been helpful. You and @Rosy are making me REALLY look forward to menopause. LOL (kidding) I also struggle with anxiety and PTSD.

I'm sorry that you're dealing with all of this - I DO know that anxiety can cause all sort of phantom problems. I have had a mystery rash all over before - I actually thought that I had poison ivy, but when it never blistered, I went to the doctor and he said it was just "hives." There was no clear reason for it, and it lasted for weeks. That same year I had massive conjunctivitis. I know now that I was under an insane amount of stress, and getting off of a medication that I had been on for years. My whole body was just reacting to it. I also get the tingling from time to time - usually when the tension in my back is really extreme, or during a PTSD "episode." Stretching and simple yoga have really helped with the PTSD symptoms like trembling, the jumpy fear response, and the tingling in my hands and feet. It helps get some of that trauma out of the body, and stimulates nerves that just make you feel better all over. I highly recommend it.

I hope you find lots of good support here - welcome again!
 
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