Headache and need relief

[Scared1234]

Brain tumors aren’t always terminal. There are benign tumors as well. My neighbor had a malignant one and it was removed and he is fine now, after 5yrs or so. If the doctor is concerned then get it checked out asap. You’ll have your answers then and a path forward. Right now you’re just spinning your wheels and thinking the worst.

When all the symptoms are pointing to “worst” it’s hard to not think the worst.

 

[Iugrad91]

So just give up? Or do the hard thing and get the tests done and formulate a plan so you can overcome whatever it is you are dealing with. Just thinking the worst when you don’t know what you’re dealing with isn’t going to help. You can’t tell by your symptoms that it’s the “worst”, like I said IF you do have a tumor (still TBD) it may be benign and/or treatable.

 

[Scared1234]

So just give up? Or do the hard thing and get the tests done and formulate a plan so you can overcome whatever it is you are dealing with. Just thinking the worst when you don’t know what you’re dealing with isn’t going to help. You can’t tell by your symptoms that it’s the “worst”, like I said IF you do have a tumor (still TBD) it may be benign and/or treatable.

I don’t know what to think/do anymore. I just have a feeling life as I know it is over. I’ve never had this string of a feeling before.

 

[Iugrad91]

Overcoming anxiety over anything (real or perceived) means changing how you think about things. You do have some control over your thoughts. You have control over whether you Google or not. You have control over getting the tests done. Take some control so you don’t feel so helpless. If you do nothing and put it off does that make it better or worse in the long run?

 

[Gooze17]

Your reaction to it makes it sound even more like anxiety honestly. Either way go get some tests done. Ignoring it isn’t going to stop it if it is a tumor, or help your anxiety if it isn’t.

 

[Scared1234]

Your reaction to it makes it sound even more like anxiety honestly. Either way go get some tests done. Ignoring it isn’t going to stop it if it is a tumor, or help your anxiety if it isn’t.

I’m definitely not in a good head space right now. This is scary stuff that can change my entire life, as well as the life of MU children/family.

 

[Scared1234]

At the coaxing of a family member who is a nurse, I ended up going in today and having a ct scan. The on call doctor didn’t think it warranted an mri today, but wants one done. The CT showed no blood clots or masses. I’m going to take that as good news. He said it didn’t rule out other neuro issues, such as MS (but that one doesn’t freak me out for some reason). He said a CT would have found a tumor or a clot. I hope that’s accurate. I had no head pain while I was waiting for the scan, but as soon as I left, the pains started up again. I thought after finding out I had no tumor, the head pains would go away. I understand there is still something going on with me, and as he said, a neuro issue but nothing life threatening at the moment. As long as it’s not a tumor or anything else that’s terminal, I can handle it. I’m hoping this head pain goes away ASAP.

 

[Phillies Phan]

At the coaxing of a family member who is a nurse, I ended up going in today and having a ct scan. The on call doctor didn’t think it warranted an mri today, but wants one done. The CT showed no blood clots or masses. I’m going to take that as good news. He said it didn’t rule out other neuro issues, such as MS (but that one doesn’t freak me out for some reason). He said a CT would have found a tumor or a clot. I hope that’s accurate. I had no head pain while I was waiting for the scan, but as soon as I left, the pains started up again. I thought after finding out I had no tumor, the head pains would go away. I understand there is still something going on with me, and as he said, a neuro issue but nothing life threatening at the moment. As long as it’s not a tumor or anything else that’s terminal, I can handle it. I’m hoping this head pain goes away ASAP.

So good to hear. On the web site I recommended to you, it’s explained that anxiety symptoms can occur during and after an anxiety state. So even when the fear fades, symptoms can remain...for quite a while. For example, I have ocular migraines. They typically affect me after I have calmed down from an episode. The fact that the pain was gone when you were distracted and finally feeling that you were being attended to is typical. Then you leave, and the what if’s still linger and then you notice the pains.

Anyway, great news. You will be around to enjoy your family for many decades to come. It’s really tough, but you should try to work on your anxiety.

 

[E.B]

I didnt want to say anything previous to you telling us results but I suspected good news and that the culprit would be primarily anxiety. Like I said in a previous post....think of all the worries here and think of all the good results.

 

[Scared1234]

I didnt want to say anything previous to you telling us results but I suspected good news and that the culprit would be primarily anxiety. Like I said in a previous post....think of all the worries here and think of all the good results.

Well, I still have to go for an MRI. As long as there’s no tumor found, I will be okay. My chiropractor ordered the mri today and gave me a referral to neurology. He also agrees Ed that CT scan rules out anything life-threatening like an aneurysm and tumor. I am just worried that the ct wouldn’t pick up really small cancer in the brain. I don’t want to get my hopes up and then find out there really was something bad. My chiro basically said this mri is to rule out MS. And for some odd reason, MS doesn’t freak me out. It’s tumors that freak me out.

 

[Iugrad91]

A really small cancer wouldn’t be giving you all the symptoms you are experiencing. Trust the doctors, you don’t have a tumor of any kind.

 

[Scared1234]

A really small cancer wouldn’t be giving you all the symptoms you are experiencing. Trust the doctors, you don’t have a tumor of any kind.

I keep thinking that. But I have had some sinus issues and it was found I have a deviated septum. Would a ct be able to pick up tumors in the sinus cavity or would they be too small?

 

[Iugrad91]

Why don’t you believe that the deviated septum is the cause of sinus issues?

 

[Scared1234]

Why don’t you believe that the deviated septum is the cause of sinus issues?

I’m hopeful that’s what it is and nothing bad is found during the mri, like a tumor. I’ve never had ear ringing before and I’ve had some sinus issues going on for awhile, along with an ear that has had pressure in it, but no infection. I don’t know if a ct scan would have shown tumors that affect the ear or not. Just don’t want to think everything is fine and then have it all come crashing down and be taken by surprise!

 

[Phillies Phan]

Acoustic neuromas are benign tumors affecting the inner ear. They occur in 1 out of 100,000 people per year. They are totally curable. Sinus tumors are even rarer. You do not have a tumor. Appears worst case is MS and over 90% are the kind with symptoms that come and go and are able to be well managed. Life expectancy is not affected by that type of MS.

 

[Scared1234]

Acoustic neuromas are benign tumors affecting the inner ear. They occur in 1 out of 100,000 people per year. They are totally curable. Sinus tumors are even rarer. You do not have a tumor. Appears worst case is MS and over 90% are the kind with symptoms that come and go and are able to be well managed. Life expectancy is not affected by that type of MS.

I am (for some reason) not worried about having MS. I would rather NOT have it, but if I do, it’s not going to make me die while my children are young.

 

[E.B]

Well, I still have to go for an MRI. As long as there’s no tumor found, I will be okay. My chiropractor ordered the mri today and gave me a referral to neurology. He also agrees Ed that CT scan rules out anything life-threatening like an aneurysm and tumor. I am just worried that the ct wouldn’t pick up really small cancer in the brain. I don’t want to get my hopes up and then find out there really was something bad. My chiro basically said this mri is to rule out MS. And for some odd reason, MS doesn’t freak me out. It’s tumors that freak me out.

We are never satisfied are we?

 

[Scared1234]

We are never satisfied are we?

Definitely not my idea to go for the mri. I wish the ct scan was enough…

 

[Scared1234]

The fact that my vision is so off in my right eye, even after a week, really concerns me. There could definitely be a small tumor pressing in my optic nerve that the ct scan couldn’t pick up. Apparently tumors have to be a certain size to show on a ct and mri is better at picking up smaller tumors and any brain Mets from other cancers. Definitely concerned again.

 

[Amw311]

The fact that my vision is so off in my right eye, even after a week, really concerns me. There could definitely be a small tumor pressing in my optic nerve that the ct scan couldn’t pick up. Apparently tumors have to be a certain size to show on a ct and mri is better at picking up smaller tumors and any brain Mets from other cancers. Definitely concerned again.

Is your vision “off” or nearly gone? My brother woke up completely unable to see out of 1 eye and went to the ER and had “optic neuritis” which is 90% of the time caused by MS. They did an MRI which showed no lesions so we don’t know why it occurred. I believe optic neuritis is different from the eye thing you have but sounds similar. You said your googling led you to the pale optic nerve being caused by lesions. Lesions are not tumors. Lesions are scars (MS) and while I don’t think you even have that…that is clearly the worst case scenario as the doctors told you. If a tumor was a possibility, they would have told you. They have to save their asses too, remember.