Doctors were dismissive, terrified I have cancer at 31

[jab1023]

It has been interesting this week. The online doc I can see through my insurance humored me, prescribing me ten days of doxycycline, the med commonly used to treat Lyme.

So I started taking it every 12 hours on Tuesday. I was feeling good, then last night was up most of the night with swirling tingling and discomfort. I read today that this is actually common with Lyme treatment 48-72 hours after you start taking meds. I'm meeting with the same doctor again on Tuesday and she might be able to order Lyme blood tests for me then.

Either way, I will strongly request to keep taking the meds the next few weeks. It feels like good things could be happening.

And Lyme can absolutely cause neuropathy. http://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/lymedisease.shtml

 

[janemariesayed]

Hey everyone. Went to the docs two days ago. She said symptoms didn't match my imaging and test results. She mentioned fibromyalgia or "mood disorder."

I'm back on Wellbutrin, and I'm hoping to slowly start returning to the gym.

Going back to the gym will do you the world of good. It will help your mood as well as your health.

 

[jab1023]

So the gym Thursday night didn't really work out even though I lifted very light. My back was in terrible pain Friday and yesterday. Yesterday I was basically in bed the whole day due to lack of sleep from the nights before. The scary part is my neurologist appointment isn't for three months, even though my doctor doesn't think it's neurological.

The arachnoid cyst I have was noted as an incidental finding, but I have to wonder if I am one of the very rare cases that it causes problems in adults. I'm so tired of being scared of this. The pain was awful here recently.

 

[janemariesayed]

So the gym Thursday night didn't really work out even though I lifted very light. My back was in terrible pain Friday and yesterday. Yesterday I was basically in bed the whole day due to lack of sleep from the nights before. The scary part is my neurologist appointment isn't for three months, even though my doctor doesn't think it's neurological.

The arachnoid cyst I have was noted as an incidental finding, but I have to wonder if I am one of the very rare cases that it causes problems in adults. I'm so tired of being scared of this. The pain was awful here recently.

Oh dear! Then maybe it is best to leave the gym alone for a while. Until all this is sorted out. Otherwise, it could make it worse.

 

[Kelculator]

So the gym Thursday night didn't really work out even though I lifted very light. My back was in terrible pain Friday and yesterday. Yesterday I was basically in bed the whole day due to lack of sleep from the nights before. The scary part is my neurologist appointment isn't for three months, even though my doctor doesn't think it's neurological.

The arachnoid cyst I have was noted as an incidental finding, but I have to wonder if I am one of the very rare cases that it causes problems in adults. I'm so tired of being scared of this. The pain was awful here recently.

Whenever you feel anxious, try to notice whether the muscles on your neck and back contract. I have had bad neck pain because of being anxious before. So maybe anxiety is putting a lot of pressure on your back as well.

 

[JACKIE]

Hey,

I am going through something similar like you. I started feeling weakness on my left leg and lower back along with some pulsing. I googled and low and behold i came across MS, ever since then i started feeling all these other symptoms. Pulsing more often in both legs, eyes and left hand. not numbness or tingling though. But somehow my leg feels weak sometimes, both legs and shaky. that sends me into panic mode and i start getting sweaty hands, and short of breath. i come to the conclusion that its a panic attack starting. I read you get double vision when you have MS and then i started having vision trouble along with brain fog. Im so freaked out i had a full physical and blood count. tested for muscle enzymes, lupus and some other things and everything was ok according to the doctor. I have another appt. in 2 days because i keep having the symptoms. Oh and the feeling tired all the time! i have horrible fatigue. i like you just want to feel normal again.

I have thought maybe i have Fibro. too so we will see what the doctor says. I really want them to get a scan of my brain neck and back just like you. i also suffer from bad all over back pain, feeling like this sucks and every day is a new battle of what will i feel today?