Degenerative neurological disease fears driving me crazy!

[Noodle108]

Hello guys,
I'm new to this forum...I've hit a really rough patch with the health anxiety so thought id post.

I've had health anxiety since I was a kid (now 38), but the last year has been horrible.
I have had so many neurological symptoms for the past year or more.....muscle twitching, numbness, nerve pain, jaw fatigue, weakness in shoulders, a change in fine motor skill, and noticeable muscle wasting in my left hand....and more. So naturally in my head all those symptoms point to some horrible neurological disease

Anyway I've had all the tests etc and all clear but I just feel so abnormal and like there is something wrong with me.

I've found a wonderful therapist and have been seeing her really regularly for the last year....but I just feel like I'm not getting much better Coz the symptoms are in my face all day every day....like every time I have to use my hands (and ironically I'm a massage therapist) I'm just reminded of how they don't feel normal anymore.

My neurologist is so dismissive and doesn't really listen to the things I'm describing! I've got a referral for a second opinion but I couldn't get in to see the new neurologist for 9 months !

Anyway I just wanted to share my story becsuse I feel like I'm going insane and I feel so alone with this! It's a living hell! I just wish I could find someone who could help explain what is goung on I my body...or my mind

Thanx for taking the time to read my story.
Nx

 

[Rinka]

Hi @Noodle108 and welcome to our community.

From what you are writing it seems as if you are expiring serve anxiety symptoms. I'm not a doctor, therefore I can give you a diagnosis or anything in that way.
But what I know from my expirences is, that anxiety and depression can have such serve physiological symptoms. If the tests say that every thing is alright, then maybe try to concentrate to get you more relaxed and evened out.
Some medication can help, but I personally prefers mindfulness, yoga and meditation.

Your body is on constant alert, due to the anxiety, so you will feel, see and notice every single little thing that's going on with your body.
Usually the brain is able to ignor this but the anxiety brain does not and might even experience things more intense.

 

[janemariesayed]

Hi @Noodle108 nice to meet you!

It is great that you are getting a second opinion but a shame you have to wait so long for your appointment. I am inclined to agree with @Rinka and that your symptoms may well be because of your anxieties. Thankfully you are in therapy so you are on the way to delving into the reasons why you have health anxieties. It will help you in the long run.

I know it isn't easy, but try to focus your mind on something else. When you get the all clear from your next appointment, you will be able to relax. I do hope that you will be okay, please let us know how you get on.

 

[Concernedgal]

Have you ever heard of Google syndrome? It's where you Google your symptoms and suddenly you feel worst and worst. Let me give you an example... one time I had a mild headache and I Google why ( because I am a hypochondriac ) and I seen everything from stroke to brain tumor. And all of a sudden... boom! My headache got worst and other other symptoms came along. I don't know if thats your case or not but, just beware about googling. Then Again . ... better safe than sorry.

 

[janemariesayed]

Google syndrome is a good name for it! lol I do it for my dogs and myself but very rarely. Thankfully, physical illness stays away from me.