HELP !!! Twitch and me.

matisworried · Aug 12, 2019

if you haven't read this already, please do so:

is my twitching related to ALS?

SusieQ · Aug 13, 2019

That is the absolute best website I've seen to help anxiety of als. I'm so glad you posted it. I was an als worrier and that would have helped me when I was in the thick of it. !

matisworried · Aug 13, 2019

SusieQ said:
That is the absolute best website I've seen to help anxiety of als. I'm so glad you posted it. I was an als worrier and that would have helped me when I was in the thick of it. !

it helped me as well! hopefully it helps the op a bit as well!

matisworried · Aug 14, 2019

Zeynep said:
Which site ?

check out my link in post 2 of this thread.

TDS74 · Aug 15, 2019

Zeynep said:
Hello to everyone My life is ruined by the fear of Als. I twitch every day. I went to the doctor, but my twitches are increasing. I'm exhausted ..
How do I get through this?
Help me please ..

I'm so sorry !! I still suffer as well and am terrified. It's been 3 months and my life has been really bad lately because of my obsessive thoughts over this, on top if other health issues.

SusieQ · Aug 15, 2019

TDS74 said:
I'm so sorry !! I still suffer as well and am terrified. It's been 3 months and my life has been really bad lately because of my obsessive thoughts over this, on top if other health issues.

Please remember that als twitches are different than what you are experiencing. The thoughts you are having are just thoughts they aren't real. Hugs. You have the control not the lies your mind is telling you.

TDS74 · Aug 15, 2019

Thank you, I hope!! I'm not sure what the differences are of them!?

SusieQ · Aug 15, 2019

TDS74 said:
Thank you, I hope!! I'm not sure what the differences are of them!?

Twitches in als come after muscle loss and death. So you would be falling and failing at normal day tasks. Enough to have someone else tell you something isn't right. It's not stumbling it's failing. Big big difference. Twitches with anxiety is harmless and very very common. I have them with high anxiety, I have them after a work out too. I have them when I'm overly tired. Just ignore the twitches, the more you zone in on them the more you keep that fear up and the more you will twitch.

TDS74 · Aug 15, 2019

Thank you so much!!!! You have no idea!! I do have other similar twitch symptoms but am trying to be calm until my next neurologist appt. However you have helped immensely!

HELP !!! Twitch and me.

Zeynep

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