Twitching And The Fear Of "A"

TwiztidTragedy said:

I've been off here for awhile and been through hell with this twitching. Does anyone experience frequent tongue twitching? My calves and full body twitching doesnt bother me as much anymore but this tongue twitching has me going into full blown panic attacks every few mins. And these what if scenarios are really ******* with me mentally.

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I have had and still experience some tounge twitches. I mentioned it to my neurologist a few weeks back but informed me that unless it is accompanied with weakness it is nothing to be concerned about. Weakness of the tounge would be very obvious. You can have twitching literally anywhere on the body.

Not to make light of your situation but I had to laugh. As you can see from my handle VetTwitch, I have been where you are. 17 years ago with 3 young kids, history of health anxiety, business stress, house move, 9/11 a couple of weeks old, I started twitching in my calves. Felt like ants crawling under my skin. Made the novice error of googling symptoms and first result was the dreaded "A" as you put it. Well, that did it. I had twitches, every where, 24/7. Yes, including tongue. Went to GP several times, said the fact you walked into the office normally, he instantly ruled out "A". Went to neuro and after testing said, "I see about 10 guys like you a year in the last decade only 1 had a neurological basis." With the anxiety I simply couldn't accept it, i would certainly be the 1 out of a 100. Suffered for 2 years, with twitches, everywhere all the time. After a couple of years I started to accept that as weakness hadn't shown up that perhaps they were right. Twitches declined over about the next 3 months. When I find myself stressed some part starts to twitch but I quickly ignore it and it stops in a few hours. Another part to the story, became friends with a guy and during a dinner party, his wife who is a Dr. mentioned that he suffered from BFS (Benign Fasciculation Syndrome aka Twitching). He too has health anxieties and had 2 young kids when it started. I know mine was STRESS related and continual focus keeps it going.

My advice, try to accept what the Dr. are telling you (they have run more tests on you that I ever had) and enjoy your kids, they grow up fast.

I try to pop in to different forums to help fellow sufferers of the dreaded twitching. Good Luck.

Twisted, I'm so, so sorry.

TwiztidTragedy said:

Yeah they dont seem to say anything about my anxiety at all. All my drs know I'm a hypochondriac and have intense stress and anxiety I never lie to my drs. That's why I'm here on this forum to pretty much ask can this be anxiety and stress? Does this sound like anxiety? Or is it a slow progression of a terminal illness. I know no one is a dr but opinions of people with anxiety and stress might have a similar story. Or might have a way for me to get rid of all this. I'm just trying to find solace and some sort of hope.

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Man I have been having crazy anxiety panic attacks etc I have now been to er 4 times 2 different ers been to my gp 4 times found out I have high cholesterol which added to my anxiety but I have panic attacks roughly same time everyday. Or every other day. I stopped smoking dipping drinking started eating better nothing has stopped seems it only happens when I’m thinking about messed up stuff like something being wrong with me and from there it just escalates but it gets to the point where I have massive headaches my body twitches to feeling like I can’t breath to feeling like I’m having a heart attack etc. I’m still on the fence of disbelief of panic attacks so. Idk wish you the best of luck brother talking to people definitely helps esp people who go through anxiety and panic. Hmu

TwiztidTragedy said:

Yeah I'm trying to ignore things and just calm down. But when my tounge buzzes and then twitches it is one of those things I cant just ignore and then I go into panic.. I thank you all for talking to me. I hope we all get some sort of hope and solace. Atm I'm so physically, emotionally, and spiritually exhausted. I feel alone and like no one understands until I read one of y'alls replys so I truly appreciate you all taking time out of your own fears and day to say something to me. Thank you. I am greatful

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I have had twitches from head to toe. Been to neurologist to cardiologist and everything's been fine. The twitches though were always the least of my worries. I guess I've had it so long I'm used to it. My thighs, calves, eyes and even head twitch a lot. Probably daily. I'm sure you're fine. I know how hard it is to go through this. I can't let go of having a heart problem even after running tests. It's never ending and never enough. Just wait until the next appointment and I'll bet after seeing no progression all your worries and even some of those symptoms may disappear. Maybe you need something other than Ativan. Like an antidepressant to treat your anxiety long term?

TwiztidTragedy said:

Got my 2nd EMG it was dirty and now they say i have MND. They are sending me to a ALS Specialist to confirm. I'm 30 with 3 sons and am scared and balling my eyes out

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Twiztid
I like I'm sure everyone on this forum am pulling for you. Please keep me updated. If you need to talk email me at richard@befit40.net and I'll give you my cell no.

TwiztidTragedy said:

Got my 2nd EMG it was dirty and now they say i have MND. They are sending me to a ALS Specialist to confirm. I'm 30 with 3 sons and am scared and balling my eyes out

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How are you doing today?

That's great news, especially coming from specialist. I'm hoping the next appointment is even more good news for you =)

TwiztidTragedy said:

at the moment i am doing well. i have seen a ALS specialist and he did a clinical exam and told me he will not repeat a 3rd EMG and he will not try to find what the other Neruologist "Found". I will be seeing the A specialist again this Tuesday ( In 2 days ) And we will go from there. I am still twitching in both claves and arches of feet 24/7. i still twitch in Knees, thighs, arms, hands, face, and sometimes tongue. My clinical exam was fine and he told me to him it is not MND and that he is saying BFS. I have been really turning toward Jesus and learning all i can about The word of god and prayer. And i will say Glory be to God. Jesus has really been turning myself and my family around for the better and this has been a eye opener for me to be the father i need to be to my children and the husband i need to be for my wife. I have learned to be humble and yes i twitch all over but it reminds me of what it could have been. I am still going through a storm and still don't have a dx yet. But i believe that God has this and that I am going to be ok. Please still keep me in your prayers and i thank you all for prayers. Happy Fathers day! And god bless you all.

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Let me how things go. Thinking of you...

Hello TwistidTragedy. How are things? Did you get any results from your doctor? I'm no longer living in the United States I'm currently living in München Germany with my family. I still have stomach issues. Numbness in abdominal area long with twitching. I believe it's a side effect from Omeprazole. I read reviews on askpatient.com and there are many people with similar symptoms who took Omeprazole. I have no weakness in my abdomen. All my symptoms started in March 2019. I hope you're doing well...

Hey man, any updates? Assuming since we haven’t heard from you you’re doing well. I hope so

TwiztidTragedy said:

at the moment i am doing well. i have seen a ALS specialist and he did a clinical exam and told me he will not repeat a 3rd EMG and he will not try to find what the other Neruologist "Found". I will be seeing the A specialist again this Tuesday ( In 2 days ) And we will go from there. I am still twitching in both claves and arches of feet 24/7. i still twitch in Knees, thighs, arms, hands, face, and sometimes tongue. My clinical exam was fine and he told me to him it is not MND and that he is saying BFS. I have been really turning toward Jesus and learning all i can about The word of god and prayer. And i will say Glory be to God. Jesus has really been turning myself and my family around for the better and this has been a eye opener for me to be the father i need to be to my children and the husband i need to be for my wife. I have learned to be humble and yes i twitch all over but it reminds me of what it could have been. I am still going through a storm and still don't have a dx yet. But i believe that God has this and that I am going to be ok. Please still keep me in your prayers and i thank you all for prayers. Happy Fathers day! And god bless you all.

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Ive had bfs for 40 years...annoying..but not sinister